Donations

I wanted to extend my thanks to all those who have helped us over the last three months. Had it not been for your generosity, we would not have survived. And most importantly, we would not have been able to be by Biggun's side. There are no words that can express how much it means to me that I was given that opportunity.

Our situation is not nearly as dire as it was. We still take it day by day and manage our money very carefully. Hike for Heroes recently assisted us by putting $2000 directly towards bills we owed, which was a huge relief for us.

If you are still interested in helping or donating, we most definitely need items to gear up for Biggun coming home. There are certain things we still need such as a baby swing, bouncer, walker, bottles, diapers, wipes, and any/all sorts of baby clothes. He is currently wearing 0-3 months.

Donations can still be done the same way - You can go to www.paypal.com and donate to the email rachelxkeslar@gmail.com. You can also go to any CHASE bank and put in a deposit to Joshua Daniel Keslar. Any questions you might have can be sent to the rachelxkeslar@gmail.com email address.

Again, thank you for all your support. You kept us alive and by our baby's side. I cannot thank you enough for that.

Thursday, February 23, 2012

ROP

So we've had a slew of great days with Biggun, and there was even discussion of moving him to an intermediate nursery. Grandma came into town and got to hold him for the first time and his progress was great.
This morning during his eye exam, they found his eyesight deteriorated rapidly and his cornea began to separate from his orbit from an excess growth of cells around the cornea that affect peripheral vision and eventually lead to blindness.
The causes of ROP are prematurity and high intake of oxygen. Because he had both, it's likely that is the cause, but this seemed to blind side his doctor.
On the positive side, Dr. Penn came back on as his attending physician, and she is such a rockstar. She has managed to proactively catch a number of issues and get him taken care of. We are going to have to buy that woman a bouquet of flowers when he finally gets discharged!
Long term, it's likely he'll have excessively poor eyesight that won't allow him to be a candidate for LASIK surgery to resolve, but this will give him the best chance to avoid blindness.
So he will need to go back on a ventilator, and he has to be put back in an isolette (he had graduated TODAY to an open bed), and he will need an IV put in, so this is an unfortunate and significant set back, but he's a fighter and I have no doubt he will overcome it rapidly like he has these last few weeks. They expect significant weight loss and recovery, so please send prayers.

Much Love,
Rachel and Joshua

1 comment: