So we have a few updates for the day...
First, the murmur is still present. That means surgery. We are waiting for the doctor to come talk to us and get the details from her.
He also has what's called a PIE, which is Pulmonary Interstitial Emphysema. Basically, because air is being forced into his lungs with this ventilator, it can sometimes force the fragile branches to break which causes air to leak behind the lungs. It's pretty dangerous, and it means that the healed wound will be scarred so he will likely suffer from some form of lung disease later. The treatment is to allow it time to heal by gently ventilating him. So keep your fingers crossed that heals up. X-Ray still shows it at this time.
The other thing worth mentioning is they found he is Coombs positive. Meaning while he was in utero, his blood mixed with mine and my cells attacked his. It happens most often with type O moms and Type A babies. It means he's predispositioned to having a higher bilirubin, so they are watching that closely.
The chaplain came by to say a prayer with me and offer communion. It reminds me that with prayer, anything is possible. Please keep us in your thoughts.
Much Love,
Rachel and Joshua
Donations
I wanted to extend my thanks to all those who have helped us over the last three months. Had it not been for your generosity, we would not have survived. And most importantly, we would not have been able to be by Biggun's side. There are no words that can express how much it means to me that I was given that opportunity.
Our situation is not nearly as dire as it was. We still take it day by day and manage our money very carefully. Hike for Heroes recently assisted us by putting $2000 directly towards bills we owed, which was a huge relief for us.
If you are still interested in helping or donating, we most definitely need items to gear up for Biggun coming home. There are certain things we still need such as a baby swing, bouncer, walker, bottles, diapers, wipes, and any/all sorts of baby clothes. He is currently wearing 0-3 months.
Donations can still be done the same way - You can go to www.paypal.com and donate to the email rachelxkeslar@gmail.com. You can also go to any CHASE bank and put in a deposit to Joshua Daniel Keslar. Any questions you might have can be sent to the rachelxkeslar@gmail.com email address.
Again, thank you for all your support. You kept us alive and by our baby's side. I cannot thank you enough for that.
Our situation is not nearly as dire as it was. We still take it day by day and manage our money very carefully. Hike for Heroes recently assisted us by putting $2000 directly towards bills we owed, which was a huge relief for us.
If you are still interested in helping or donating, we most definitely need items to gear up for Biggun coming home. There are certain things we still need such as a baby swing, bouncer, walker, bottles, diapers, wipes, and any/all sorts of baby clothes. He is currently wearing 0-3 months.
Donations can still be done the same way - You can go to www.paypal.com and donate to the email rachelxkeslar@gmail.com. You can also go to any CHASE bank and put in a deposit to Joshua Daniel Keslar. Any questions you might have can be sent to the rachelxkeslar@gmail.com email address.
Again, thank you for all your support. You kept us alive and by our baby's side. I cannot thank you enough for that.